Tag: cystic fibrosis patients
Macedonia 09.02.23 | 16:33

It is sad one to die in the 21st century from a disease for which there is treatment, we are outraged by the long wait, there is no more time, say cystic fibrosis patients

It is unfortunate that in the 21st century, when there is a drug for this disease, cystic fibrosis patients die. We are very outraged by the long wait and deciding whether to bring the drug and for how many patients. There is no more time to wait, said Irena Vasilevska, mother of a child with cystic...
Macedonia Health 09.02.23 | 14:33

140 million denars have been provided for the “Trikafta” drug for eight cystic fibrosis patients

140 million denars have been provided for the “Trikafta” drug for eight cystic fibrosis patients, Minister of Health Bekim Sali announced on Facebook. Budget funds were provided today for the purchase of the “Trikafta” drug for 8 cystic fibrosis patients. It is about budget funds...
Macedonia Health 09.02.23 | 09:48

Cystic fibrosis patients to protest in front of government building

Patients from the Cystic Fibrosis Association will stage a protest in front of the Government today at 2 pm. This dissatisfaction comes after the death of a cystic fibrosis patient who was waiting for two years for the authorities to provide the necessary therapy. Seven other patients are in a similar...

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