Tag: cystic fibrosis
Macedonia 04.08.23 | 16:13

Cystic fibrosis patients affected by lack of another drug

Patients suffering from cystic fibrosis are warning that they’re her without the necessary drug creon. This comes on top of the prolonged lack of another drug, trikafta, in the public healthcare system. The extreme cost of this drug, and the lack of a publicly funded supply. led to the death of...
Macedonia 16.04.23 | 14:33

Healthcare Ministry won’t get involved in the disputed distribution of the cystic fibrosis drug

Healthcare Minister Fatmir Mexhiti was asked about the scandal over the expensive cystic fibrosis drug trikafta, which was eventually procured after public protests from patients but is apparently not being distributed evenly. Mexhiti said that the Government purchased drugs for 12 patients, and will...
Macedonia 15.04.23 | 19:46

Scramble to get an expensive medicine causes rift in the association of patients with cystic fibrosis

The heads of the association of patients who suffer from cystic fibrosis have turned on their most outspoken member Igor Pehcevski, who mobilized the public by posting pictures from his hospital bed, demanding that the public healthcare fund procures the necessary drug trikafta. The drug was purchased...
Macedonia 15.04.23 | 12:24

Doctor threatened patient with cystic fibrosis with denial of treatment if he continues to protest the lack of lifesaving medicine

Igor Pehcevski, one of the patients suffering from cystic fibrosis who has been out campaigning for cure for the rare illness, says that a doctor rudely warned him to stop making statements about the lack of medicine and sid that he will be removed from the hospital. The patients were protesting to demand...
Macedonia 08.03.23 | 20:45

After deaths and long suffering, patients with cystic fibrosis expect to receive the expensive drug trikafta

Patients struggling with cystic fibrosis have been informed that the trikafta drug has been procured and that doses are in Macedonia. One of the patients, Blagojce Ilievski, who even met with President Stevo Pendarovski to plead that the public healthcare fund purchases the extremely expensive drug,...
Life Macedonia 11.02.23 | 16:42

Dr. Nikolov: One drug cannot cost more than human life

The chair of the Health Committee of VMRO-DPMNE, Igor Nikolov, reacts to the fact that the Government is looking for excuses, instead of immediately, without any prolongation, starting the procedure for the procurement of a drug for cystic fibrosis patients because the health and lives of those people...
Macedonia 09.02.23 | 15:37

Kovacevski: We could have saved Blagojce, Sali to think about whether he can continue his mandate

I do not intend to wait through the bureaucratic labyrinths for something to be done, but specific steps have already been taken this morning and I have decided to immediately allocate financial resources from the Health Insurance Fund for the most critical patients with cystic fibrosis, informed Prime...
Macedonia 08.02.23 | 22:45

Patient with cystic fibrosis died after the Government refused to provide funding for the necessary therapy

Blagojce Ilievski, a patient suffering from cystic fibrosis who was one of the leading advocates demanding help from the public healthcare system, has died today. Ilievski was prominent in demanding urgent support over the past two years, and met with President Stevo Pendarovski to press the case of...
Health 08.02.23 | 14:57

First patient waiting for cystic fibrosis drug dies

Blagojce Ilievski, the most seriously ill cystic fibrosis patient in the country, died today. The Cystic Fibrosis Association also confirmed the news. In his last statement, Blagojce hoped that he was in that group of eight patients who are in the most serious health condition. I believe that I am in...

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